Prognosis

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EmilyAxton
March 15, 2019 - 6:59 pm
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EmilyAxton
Total Posts: 23
Joined: 04-05-2013
Hey All,
What's the prognosis for bipolar disorder? How many of you live happy well adjusted lives? What's the amount of time between episodes? What's the longest you've been symptom free? Do you work, full time? Doing what? Are you married? Kids? What's your living situation? How often do you see your therapist and psychiatrist? PLEASE, as many of you as possible, tell me about your life!!!!!!!!!!
Emily


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EmilyAxton
EmilyAxton
March 15, 2019 - 6:59 pm
Hey All,
What's the prognosis for bipolar disorder? How many of you live happy well adjusted lives? What's the amount of time between episodes? What's the longest you've been symptom free? Do you work, full time? Doing what? Are you married? Kids? What's your living situation? How often do you see your therapist and psychiatrist? PLEASE, as many of you as possible, tell me about your life!!!!!!!!!!
Emily


Catriona
March 24, 2019 - 2:45 am
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Catriona
Total Posts: 4
Joined: 11-17-2016
Hi!
I'm not pure bipolar, i got labelled schizoaffective bipolar type so i hope this still helps....
Honestly it took me about... 4 or 5 years to get to my state of 90% functional but boy did it feel good when i realised my effort paid off. Ive been mood symptom free since... 2015? and i do miss the ups sometimes. I wonder if i ever had those episodes now, which makes me want to ditch all my healthy lifestyle changes just as an experiment. I have infrequent and shortish (up to 2 days) psychotic episodes under extreme stressand anxiety with certain triggers. Like binge watching shows about demons to reduce my anxiety (almost ended in a trip to the psych ward lol).
I dont work, but i am a nursing student at university and do volunteer work, i am comfortable driving again and i dont have sensory overload issues very often anymore either.
Not married, dont have children. I do live with my parents because they plan on travelling for a long time and want me to look after the house. (not complaining because the rent is cheaper than other places! yes they make me pay rent, its fair)
I see my psych every month because one of my meds requires frequent medical tests and they only give 4 weeks and no repeats. I see a psychologist every 1-2 weeks depending on how i feel and i honestly think i dont need them anymore.
Is that enough? feel free to ask more questions!


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Catriona
Catriona
March 24, 2019 - 2:45 am
Hi!
I'm not pure bipolar, i got labelled schizoaffective bipolar type so i hope this still helps....
Honestly it took me about... 4 or 5 years to get to my state of 90% functional but boy did it feel good when i realised my effort paid off. Ive been mood symptom free since... 2015? and i do miss the ups sometimes. I wonder if i ever had those episodes now, which makes me want to ditch all my healthy lifestyle changes just as an experiment. I have infrequent and shortish (up to 2 days) psychotic episodes under extreme stressand anxiety with certain triggers. Like binge watching shows about demons to reduce my anxiety (almost ended in a trip to the psych ward lol).
I dont work, but i am a nursing student at university and do volunteer work, i am comfortable driving again and i dont have sensory overload issues very often anymore either.
Not married, dont have children. I do live with my parents because they plan on travelling for a long time and want me to look after the house. (not complaining because the rent is cheaper than other places! yes they make me pay rent, its fair)
I see my psych every month because one of my meds requires frequent medical tests and they only give 4 weeks and no repeats. I see a psychologist every 1-2 weeks depending on how i feel and i honestly think i dont need them anymore.
Is that enough? feel free to ask more questions!


artista
April 5, 2019 - 7:10 am
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artista
Total Posts: 868
Joined: 06-12-2011
Hi Emily,

I rarely visit this site. But here goes.

Yes I live a happy well adjusted life. But I have my meds dialed in pretty well. I have a wonderful psychiatrist!

I’ve certainly had my mood swings. Especially when in perimenopause. I became psychotic thinking a demon was sitting on my shoulder. It would scream in my right ear, telling me to commit homicide/suicide. This was before I was medicated. I’ve not been like that since meds. I’ve only hallucinated I think because of extreme sleep deprivation. I do get mania and depression but I’ve been in remission since I’ve been on Vraylar. That’s been about nine months. A long streak for me!!!!

Everyone is unique. I think after five years of therapy I have a handle on how to cope with bipolar I and complex PTSD. I also have ADD. I do the best I can. I also have a loving supportive husband who has been through hell and back with me, but has always stuck by my side. This helps immensely. He keeps an eye on my moods and lets me know if things are off as I often don’t realize it. Then I call my doc or take some extra Seroquel on top of my Vraylar to quiet things down, as he said I could do. I always am med compliant! And I don’t drink or do drugs as it defeats the purpose of my meds. I am on 14 prescription meds, 6 of which are for psych, the most of the rest for side effect control.

Sleep is a huge problem for me. I can fall asleep easily, but cannot stay asleep. So I rely on a mix of Klonopin and Seroquel.
I did retire from being a patent attorney at
age 53 because of stress. I can’t deal
with a lot of stress, BUT I also know
complex PTSD contributes to that. So
know I’m trying to live as an artist. I was
good at saving money when I worked, and
made a lot of it. So retiring at 53 was
doable. My husband is a financial planner
which helps!

I never had kids because of my mood swings and temper. But I wasn’t treated till I was about 40. My husband and I thought my moods were learned behavior. My father was bipolar as well. We were just really ignorant or would have sought help earlier.

I haven’t seen a therapist for about three years. I’ve had enough—I think I mentioned that. The therapist I had specialized in PTSD and mood disorders. She and I clicked right away.

I guess the bottom line is that I am just plain lucky to have good docs and good support at hone. That makes a big difference in how one copes. But I do know there is life after diagnosis. It is not always easy, but for me having strong faith and church activities helps.

I see my doc every 2-3 months, but he is always available for emergency.

Weight gain since meds has been the worst, 90 pounds!!! It sucks. I now have metabolic disorder and I blame meds for that. But some things you just have to live with. Part of the disease.

That’s all I can think of. Sorry to ramble! If you have questions, just ask! I’ll try to remember to check this site. I’ve switched to the eMoods app since moodtracker started charging $ to see the nine years of medication data I have. So I’ve stopped logging moods here. Pisses me off!

Take care



Spam? Offensive?
artista
artista
April 5, 2019 - 7:10 am
Hi Emily,

I rarely visit this site. But here goes.

Yes I live a happy well adjusted life. But I have my meds dialed in pretty well. I have a wonderful psychiatrist!

I’ve certainly had my mood swings. Especially when in perimenopause. I became psychotic thinking a demon was sitting on my shoulder. It would scream in my right ear, telling me to commit homicide/suicide. This was before I was medicated. I’ve not been like that since meds. I’ve only hallucinated I think because of extreme sleep deprivation. I do get mania and depression but I’ve been in remission since I’ve been on Vraylar. That’s been about nine months. A long streak for me!!!!

Everyone is unique. I think after five years of therapy I have a handle on how to cope with bipolar I and complex PTSD. I also have ADD. I do the best I can. I also have a loving supportive husband who has been through hell and back with me, but has always stuck by my side. This helps immensely. He keeps an eye on my moods and lets me know if things are off as I often don’t realize it. Then I call my doc or take some extra Seroquel on top of my Vraylar to quiet things down, as he said I could do. I always am med compliant! And I don’t drink or do drugs as it defeats the purpose of my meds. I am on 14 prescription meds, 6 of which are for psych, the most of the rest for side effect control.

Sleep is a huge problem for me. I can fall asleep easily, but cannot stay asleep. So I rely on a mix of Klonopin and Seroquel.
I did retire from being a patent attorney at
age 53 because of stress. I can’t deal
with a lot of stress, BUT I also know
complex PTSD contributes to that. So
know I’m trying to live as an artist. I was
good at saving money when I worked, and
made a lot of it. So retiring at 53 was
doable. My husband is a financial planner
which helps!

I never had kids because of my mood swings and temper. But I wasn’t treated till I was about 40. My husband and I thought my moods were learned behavior. My father was bipolar as well. We were just really ignorant or would have sought help earlier.

I haven’t seen a therapist for about three years. I’ve had enough—I think I mentioned that. The therapist I had specialized in PTSD and mood disorders. She and I clicked right away.

I guess the bottom line is that I am just plain lucky to have good docs and good support at hone. That makes a big difference in how one copes. But I do know there is life after diagnosis. It is not always easy, but for me having strong faith and church activities helps.

I see my doc every 2-3 months, but he is always available for emergency.

Weight gain since meds has been the worst, 90 pounds!!! It sucks. I now have metabolic disorder and I blame meds for that. But some things you just have to live with. Part of the disease.

That’s all I can think of. Sorry to ramble! If you have questions, just ask! I’ll try to remember to check this site. I’ve switched to the eMoods app since moodtracker started charging $ to see the nine years of medication data I have. So I’ve stopped logging moods here. Pisses me off!

Take care



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