It's always hard on the partners (and kids) to have to deal with us - very changeable people. I am not dependent on my husband, though he often refuses to put me in situations where I might become more stressed (eg being away overnight - or more! - with work), sometimes to his own detriment. I love that he fills in all the gaps that I just can't cope with - I feel lazy and like I'm not pulling my weight in the relationship. He isn't my 'carer' in the strict sense, but he certainly cares for me. And as you've all described, that can take its toll on our family and friends. For us, part of the solution is to provide him with time out from dealing with me. So Wednesday nights are sacrosanct - he goes to a friends, veges, eats what he wants, watches sci-fi videos until about midnight. If, for some reason, that really can't be done, it is transferred to another night. That gives him back some perspective, and makes him feel like I care for him, too.
As for the understanding of who I am, I took him to the doctor, made him read, watched some videos on the subject, told him what I knew, researched together, etc. It was only several years later that it all made sense to him and he realised that I couldn't "just calm down" or "just snap out of it", etc by listening to a radio program that more or less reinforced all I'd be saying. The key thing he understands about it all now is that it is a physical condition, not something in my head that I can grow out of if I try hard enough. He refers to it as something like "mental diabetes" - you have something that doesn't work right to produce the appropriate whatevers, just like insulin-dependent diabetics. And they have to accept that they will need to have insulin forever to keep them healthy. That's why I have a cocktail of pills each day - they are largely prophylactic.
Wotcrazyness
Joined: 12-20-2008