Hi HoosierK

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kumbaya
April 4, 2011 - 2:06 am
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kumbaya
Total Posts: 718
Joined: 04-20-2010
HK!

What's up? I thought you were never coming back...ITS good to hear from you.

ALWAYS love how you put exercise & supplements on your medications list & talk about how, combined w/diet & good sleep hygiene, they can effectively strangle Bipolar symptoms...

I have been working on diet AS Depakote & Seroquel make maintaining a decent weight range VERY difficult, even if I avoid unhealthy foods. Otherwise they've been life savers FOR mood stability & racing thoughts. Doc says that's what the combo is for, although I thought Seroquel was to help me sleep. If I don't take it I won't sleep for 2days. which was my pattern before meds.

My sleep is nutty again after it became much better during my 1st 6 to 8mos of taking Seroquel. I was put on it b/c Trazadone didn't affect me OR it made my sleep even more unpredictable than it already was. There are lots of Dr's in my immediate family & some are of the opinion I need to get off Seroquel. Like its bad news to be on for long. When I hold some1's hand for longer than 10secs, my pinky finger starts twitching. I can't see as far as I used to BUT the muscle tremors that were mostly in my forearms have largely subsided as a result of not doing construction anymore I think OR could be the weight I've gained has thinned the amount of meds in my blood - body fat. 1.5yrs ago I was 180 to 190, now I'm 225 to 235. Mostly med related weight gain...

In 2005 I hurt my knee. HAD to stop running around. This was the beginning of my fall into major depression hitting the lowest point at the end of 2009 & resulting in hospitalization & BP type 1 dx in Jan 2010. I also started getting gout attacks that were becoming more frequent & more serious. I've had 3rd degree burns & broken bones NEITHER of which compare to the pain of these gout attacks. I'm only 44 & some of my joints are permanently damaged as a result. I expect to be particularly vulnerable to arthritis...

WHAT I'm getting at IS: I realize I'm not nearly as active...I'm nowhere near the wild & crazy man I used to be as I'm creeping closer to consistent mood levels. Mania is RARE, lasts a mere fraction of the time it used to & the symptoms are MUCH more subtle. For 20yrs I had to have jobs that would accommodate racing thoughts, high energy level & not sitting still = construction & working w/children. My Dr.'s have said NO to running & I'm having a hard time finding a way to get the same kind of results in as quick a way. I used to play sports b/c competition WAS my inspiration for exercise. NOW I can't even go hiking w/friends when & if there are going to be steep descents involved.

IF I could find a way to motivate myself to join a gym & treadmill, elliptical OR swim I really believe I'll sleep better WITH exercise (cardio) & meditation being a part of my daily routine LIKE taking my meds ~ I almost never miss.

I saw that you are taking Vyvanse. HOW does ti work for you? They were reluctant to put me on ADHD meds b/c of substance abuse history. Strattera didn't work & I don't like taking my Wellbutrin as I'm supposed to either. I usually take 1 a day & might even miss a day out of 2wks. Finally I've recently been put on Vyvanse (50mgs now) & its a world of difference. I STILL have to sit down BUT once I do I don't get up every 2 seconds - I can actually focus. Truly a MIRACLE. No wonder I never was fond of meth or crack! I DID like snorting coke though probably b/c I could drink more & longer: I called it "marching powder".

Anyway, I wrote this rant b/c I was excited to read your posts again. I've missed your input.

So happy you checked in & I'm glad you are doing well. Hope to hear from you again soon.

-cb-



Medications for March 2011
04-20-2010 - Present:Depakote (divalproex), 750mg . 1 @ bedtime
04-20-2010 - Present:Seroquel (quetiapine), 100 to 300. @ nite only
11-02-2010 - Present:bupropion SR, 150 mg. twice daily
02-22-2011 - Present:Vyvanse (lisdexamfetamine dimesylate), 40mg. 1 upon wakening
02-22-2011 - 04-02-2011:Zyloprim (allopurinol), 300mg. 1 a day

Spam? Offensive?
kumbaya
kumbaya
April 4, 2011 - 2:06 am
HK!

What's up? I thought you were never coming back...ITS good to hear from you.

ALWAYS love how you put exercise & supplements on your medications list & talk about how, combined w/diet & good sleep hygiene, they can effectively strangle Bipolar symptoms...

I have been working on diet AS Depakote & Seroquel make maintaining a decent weight range VERY difficult, even if I avoid unhealthy foods. Otherwise they've been life savers FOR mood stability & racing thoughts. Doc says that's what the combo is for, although I thought Seroquel was to help me sleep. If I don't take it I won't sleep for 2days. which was my pattern before meds.

My sleep is nutty again after it became much better during my 1st 6 to 8mos of taking Seroquel. I was put on it b/c Trazadone didn't affect me OR it made my sleep even more unpredictable than it already was. There are lots of Dr's in my immediate family & some are of the opinion I need to get off Seroquel. Like its bad news to be on for long. When I hold some1's hand for longer than 10secs, my pinky finger starts twitching. I can't see as far as I used to BUT the muscle tremors that were mostly in my forearms have largely subsided as a result of not doing construction anymore I think OR could be the weight I've gained has thinned the amount of meds in my blood - body fat. 1.5yrs ago I was 180 to 190, now I'm 225 to 235. Mostly med related weight gain...

In 2005 I hurt my knee. HAD to stop running around. This was the beginning of my fall into major depression hitting the lowest point at the end of 2009 & resulting in hospitalization & BP type 1 dx in Jan 2010. I also started getting gout attacks that were becoming more frequent & more serious. I've had 3rd degree burns & broken bones NEITHER of which compare to the pain of these gout attacks. I'm only 44 & some of my joints are permanently damaged as a result. I expect to be particularly vulnerable to arthritis...

WHAT I'm getting at IS: I realize I'm not nearly as active...I'm nowhere near the wild & crazy man I used to be as I'm creeping closer to consistent mood levels. Mania is RARE, lasts a mere fraction of the time it used to & the symptoms are MUCH more subtle. For 20yrs I had to have jobs that would accommodate racing thoughts, high energy level & not sitting still = construction & working w/children. My Dr.'s have said NO to running & I'm having a hard time finding a way to get the same kind of results in as quick a way. I used to play sports b/c competition WAS my inspiration for exercise. NOW I can't even go hiking w/friends when & if there are going to be steep descents involved.

IF I could find a way to motivate myself to join a gym & treadmill, elliptical OR swim I really believe I'll sleep better WITH exercise (cardio) & meditation being a part of my daily routine LIKE taking my meds ~ I almost never miss.

I saw that you are taking Vyvanse. HOW does ti work for you? They were reluctant to put me on ADHD meds b/c of substance abuse history. Strattera didn't work & I don't like taking my Wellbutrin as I'm supposed to either. I usually take 1 a day & might even miss a day out of 2wks. Finally I've recently been put on Vyvanse (50mgs now) & its a world of difference. I STILL have to sit down BUT once I do I don't get up every 2 seconds - I can actually focus. Truly a MIRACLE. No wonder I never was fond of meth or crack! I DID like snorting coke though probably b/c I could drink more & longer: I called it "marching powder".

Anyway, I wrote this rant b/c I was excited to read your posts again. I've missed your input.

So happy you checked in & I'm glad you are doing well. Hope to hear from you again soon.

-cb-



Medications for March 2011
04-20-2010 - Present:Depakote (divalproex), 750mg . 1 @ bedtime
04-20-2010 - Present:Seroquel (quetiapine), 100 to 300. @ nite only
11-02-2010 - Present:bupropion SR, 150 mg. twice daily
02-22-2011 - Present:Vyvanse (lisdexamfetamine dimesylate), 40mg. 1 upon wakening
02-22-2011 - 04-02-2011:Zyloprim (allopurinol), 300mg. 1 a day

HoosierK
April 6, 2011 - 5:25 pm
Spam? Offensive?
HoosierK
Total Posts: 265
Joined: 08-30-2008
The bad part about being healthy and stable is that I get so busy living my life that I don't take time to check in online. Lately it's been more like once every 2 months than once every 2 weeks as I had planned.

I'm also a formerly athletic and active person who has put on about 80 pounds, developed bad knees, a bad ankle and a bad back. Walking has always been the best antidepressant for me, but I often let various obstacles break my routine.

Less than 3 months ago my back went out and I couldn't even walk to the bathroom without a great deal of effort and pain. I am so happy to say that I just returned from 3 days of hiking! The 1st day I took a strenuous 6 hour hike in a thunderstorm. The 2nd day I took 3 shorter hikes totally about 4 hours (the 1st one right before dawn). Then I again left the cabin before dawn this morning and hiked about 2.5 hours. The after lunch took 1 more 1 hour hike before having to head home.

I did have to take 25mg Seroquel to calm my excited brain the night before the first hike and probably wouldn't have had the motivation to do it if not for 1/3 of a 50mg capsule of Vyvance.

Seroquel is working much better for me as a PRN sleep aid as oppossed to every night. Thanks to all the supplements I now take and training my brain with a blindfold for a few months, I am now sleeping more regularly than I have in my entire life! Only when I have unavoidable extreme social rythym disruptions do I need the extra boost of the Seroquel to shut my brain down. A mega dose of GABA would probably have the same effect, but with insurance it is cheaper to just take the Seroquel.

Well gotta go unpack. Hopefully I'll have time to chat again next week when I catch up on my charting.

K


(Psalm 94:19) . . .When my disquieting thoughts became many inside of me, Your own consolations began to fondle my soul.
Spam? Offensive?
HoosierK
HoosierK
April 6, 2011 - 5:25 pm
The bad part about being healthy and stable is that I get so busy living my life that I don't take time to check in online. Lately it's been more like once every 2 months than once every 2 weeks as I had planned.

I'm also a formerly athletic and active person who has put on about 80 pounds, developed bad knees, a bad ankle and a bad back. Walking has always been the best antidepressant for me, but I often let various obstacles break my routine.

Less than 3 months ago my back went out and I couldn't even walk to the bathroom without a great deal of effort and pain. I am so happy to say that I just returned from 3 days of hiking! The 1st day I took a strenuous 6 hour hike in a thunderstorm. The 2nd day I took 3 shorter hikes totally about 4 hours (the 1st one right before dawn). Then I again left the cabin before dawn this morning and hiked about 2.5 hours. The after lunch took 1 more 1 hour hike before having to head home.

I did have to take 25mg Seroquel to calm my excited brain the night before the first hike and probably wouldn't have had the motivation to do it if not for 1/3 of a 50mg capsule of Vyvance.

Seroquel is working much better for me as a PRN sleep aid as oppossed to every night. Thanks to all the supplements I now take and training my brain with a blindfold for a few months, I am now sleeping more regularly than I have in my entire life! Only when I have unavoidable extreme social rythym disruptions do I need the extra boost of the Seroquel to shut my brain down. A mega dose of GABA would probably have the same effect, but with insurance it is cheaper to just take the Seroquel.

Well gotta go unpack. Hopefully I'll have time to chat again next week when I catch up on my charting.

K


(Psalm 94:19) . . .When my disquieting thoughts became many inside of me, Your own consolations began to fondle my soul.
kumbaya
April 7, 2011 - 11:19 pm
Spam? Offensive?
kumbaya
Total Posts: 718
Joined: 04-20-2010
Hi HK,

Thanks for responding. Your posts give me hope for the future...I've been doing this bipolar diagnosis routine for almost 1.5 years ~ diet, exercise & sleep are SO important & I often lose sight of this fact b/c OF diligently going to therapy, taking my meds while staying off of ALL other non prescribed drugs except caffeine & working on how I relate to & communicate w/others (relationships).

I am also beginning to practice meditation again. I stopped many years ago due to getting crazier & crazier...it was a great tool in my early to mid 20's when bipolar wasn't even on the horizon. I had endless energy. I did have ADHD but thought I didn't b/c I managed the symptoms so well. Certain family members knew...

Wasn't til I hit 30 that mania started to set in OR stopped working for me. I'm finally trying to find balance again @ 44!

-cb-


Spam? Offensive?
kumbaya
kumbaya
April 7, 2011 - 11:19 pm
Hi HK,

Thanks for responding. Your posts give me hope for the future...I've been doing this bipolar diagnosis routine for almost 1.5 years ~ diet, exercise & sleep are SO important & I often lose sight of this fact b/c OF diligently going to therapy, taking my meds while staying off of ALL other non prescribed drugs except caffeine & working on how I relate to & communicate w/others (relationships).

I am also beginning to practice meditation again. I stopped many years ago due to getting crazier & crazier...it was a great tool in my early to mid 20's when bipolar wasn't even on the horizon. I had endless energy. I did have ADHD but thought I didn't b/c I managed the symptoms so well. Certain family members knew...

Wasn't til I hit 30 that mania started to set in OR stopped working for me. I'm finally trying to find balance again @ 44!

-cb-


HoosierK
April 8, 2011 - 7:49 am
Spam? Offensive?
HoosierK
Total Posts: 265
Joined: 08-30-2008
Have you read Bipolar In Order by Tom Wooten yet? I don't agree with 100% but I think you would find his positive approach to making the most of our circumstances. I had already reached a lot of the same conclusions he's come to as well and it is nice to know that there are influential people helping metally ill live more satisfying lives.

If you google Bipolar Advantage you should find links to the 2 sites he blogs at. Sorry I have such a busy day planned that I don't have time to look them up for you right now. I think one of the blogs is at www.psychcentral.com .

By the way I was about 30 when 2 quack pdocs prescribed antidepressants to me that ruined my balancing act between ADHD & cyclothymia. About 3 years ago after EVERYTHING about 7 pdocs tried me on making me worse and nearly killing me, I FINALLY took matters into my own hands and started doing my own research with my symptoms and circumstances in mind and thankfully have a WONDERFUL family doc who is willing to prescribe the few meds I an't find affordable alternatives for yet.

I'm now 46 and in the best health I have been in since I was 30!

K


(Psalm 94:19) . . .When my disquieting thoughts became many inside of me, Your own consolations began to fondle my soul.
Spam? Offensive?
HoosierK
HoosierK
April 8, 2011 - 7:49 am
Have you read Bipolar In Order by Tom Wooten yet? I don't agree with 100% but I think you would find his positive approach to making the most of our circumstances. I had already reached a lot of the same conclusions he's come to as well and it is nice to know that there are influential people helping metally ill live more satisfying lives.

If you google Bipolar Advantage you should find links to the 2 sites he blogs at. Sorry I have such a busy day planned that I don't have time to look them up for you right now. I think one of the blogs is at www.psychcentral.com .

By the way I was about 30 when 2 quack pdocs prescribed antidepressants to me that ruined my balancing act between ADHD & cyclothymia. About 3 years ago after EVERYTHING about 7 pdocs tried me on making me worse and nearly killing me, I FINALLY took matters into my own hands and started doing my own research with my symptoms and circumstances in mind and thankfully have a WONDERFUL family doc who is willing to prescribe the few meds I an't find affordable alternatives for yet.

I'm now 46 and in the best health I have been in since I was 30!

K


(Psalm 94:19) . . .When my disquieting thoughts became many inside of me, Your own consolations began to fondle my soul.

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